Purpose/Goals of the Study
Researchers at the University of Michigan are currently conducting a study to help us learn more about how Huntington Disease (HD) affects symptoms (like sleep and worry) and functioning (like physical activity and speaking) in people with HD (IRBMED HUM00195774.
What do I have to do?
- Baseline Visit: 2 hours (In-Person)
- Complete surveys, a walking test, a physical exam, thinking/memory tasks and answer questions about mood and behavior
- Receive instructions for home monitoring period
- 7-Day Home Monitoring Period: ~25 minutes per day for 7 days
- Wear a study-provided watch (PRO-Diary) that measures sleep and activity
- Complete brief surveys each morning, afternoon and evening directly on the PRO-Diary
- Complete additional surveys each evening
Study participants must:
- Have a clinical diagnosis of HD and/or a positive gene test for HD
- Be at least 18 years of age
- Be able to operate the PRO-Diary independently or have someone who can assist with its operation (putting it on/off, silencing alerts, entering ratings, etc.)
- Be willing to complete all study assessments
Compensation for participation is up to $105.
For more information, please contact study staff at 734-764-0644 or by email at PMR-CODAlab@med.umich.edu.